Two Peas in a Pod
30May/090

Adirondack Cowgirls Drill Team Benefit Horse Rides

 Today we went over to Agway in Fort Edward, NY to join in the fun of the Adirondack Cowgirls Drill Team at their Benefit Horse Ride for Charlotte.  Wow, this was super cool, and we were touched very much by the kindness of this group of wonderful ladies.

Here is the video of Charlotte on her very first horsey ride!

Here are some still shots of us having some fun!

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11Apr/090

TEAM Charlotte: Songs of Love

When Charlotte’s condition was first diagnosed we came across a charity called Songs of Love (www.songsoflove.org) that have singer/songwriters who work with them to create original songs for critically and terminally ill children.

We submitted Charlotte’s information, her likes, her pet’s, and a bunch of other details, and then today we received Charlotte’s Song of Love, titled Everybody Loves Charlotte.

Please see this page on our site to listen to the song, it is really great!  http://www.tobyandjoann.com/charlotte/everybody-loves-charlotte/

This song was writen and performed by Stacy and Rick Delima, from Nashville, TN.  They are professional musicians, and you can learn more about them on the Songs of Love website.

11Apr/090

TEAM Charlotte: Last Chemo Session

Today was the last chemo day!  YAAY!  We are all done, and most importantly, Charlotte is done and has been the complete warrior during this time.

We got to the clinic at about 9am and played for a little while before we went into an exam room.  They accessed Charlotte's port, and drew some blood, then gave her the last Vincristine dose.  Daddy then walked the blood down to the lab.  We all went back to the playroom while we waited on the blood results to come back.

Charlotte's numbers looked great, and her AFP was now down to 40.

The schedule for the next few months will be a regular blood test after chemo, then in 3-4 weeks she will have a sedated CT Scan and an ultrasound.  After we return from our June trip to Ireland, Wales and Enland she will have the port removed.  Then every 3-months we will need to return for blood-work.

After clinic, we went up to D7N to visit Colbie.  She was getting ready to go into surgery to have better feeding tubes put in.  What a sweet little girl, and such a warrior!

As we were leaving D7N we stopped and said hi to a bunch of nurses and doctors that we'd got to know over the last couple of months.  We then went to the Ronald McDonald House to visit with Debbie (the House Manager), and her puppy, Dixie!  Debbie is so nice, and we brought her the t-shirts that she had ordered.  She let Charlotte go to the Toy Closet again, and Char picked out a Tea Set (with a little help from Mommy!)

When we all got home, Granny cut Charlotte's hair, so that it is now all even.  This is so that when her hair starts to grow back it will not be mixed in with the stringy hair that was left after chemo made the rest fall out.  She was such a good girl while Granny did this, and didn't fuss at all.  Granny then made her a bandana that she wore most of the evening!

We all went out to dinner at Disha Masala Indian in Lake George to celebrate birthdays for Granny and Mommy, and to celebrate Charlotte's last chemoterapy!

3Apr/090

TEAM Charlotte: Last Chemo Cycle

We arrived back at Albany Medical Center last night for what we understood to be Charlotte's third of four chemotherapy cycles.  By about 9pm she was hooked up to the hydration drip, and when Mommy and Daddy left to go to Ronald McDonald House for the night, Charlotte was asleep soon thereafter.  Granny stayed with Char in the hospital.

Anyway, this morning, Christina, one of the RN from the clinic came to see us and told us that this was going to be our last chemo cycle!  YAAY!  This is absolutely outstanding news that we are overwhelmed to here.

They will also be administering Neulasta to this cycle, as she was sick during the last cycle.  This is to help increase the white cells during chemo treatment, thus helping combat infections.  This is being done as a precaution because Char ended up in the hospital with the fever, and needed the new blood two weeks ago.

Char is getting ready for her morning nap, Granny has left to go to the RMH, and Mommy and Daddy are rejoicing in the momment! :)

Thank you to all for prayer and thoughts, notes of love and gifts of love!  We appreciate all of you.

22Mar/090

TEAM Charlotte: Fundraiser

img_0358Thank you to all who came to the TEAM Charlotte Fundraiser Benefit.  What a complete success, and a huge THANK YOU must go out to Lois and Rick Melito.  You are truely two of the most wonderful people in the entire world, and we love you both very much.

The fundraiser started at about 1pm, with Melvin the Magnificent taking the stage at 1:30pm.  His show was great, and both kids and adults had much fun.

Next up was the ice cream social, where there was loads of ice cream, and loads of social mixing. What fun...

After the ice cream, we could bowl.  This also was much fun, and folks had a really good time.

img_0363During the whole event we also had a bake sale, and a raffle. There was about 20 items available in the raffle, with a number of items being hotly contested for.

Thank you to all those that donated items for the raffle, including:

  • "happy camper" gifts from One On 1 Design
  • Hello Kitty gift basket from The Reardon Group
  • Cardmaker's gift basket from Lisa Frinton
  • Kids Spring basket from Lois Melito
  • img_0357Lia Sophia Jewelry from Ashlee Olivas
  • Craft items from Sharon Scranton
  • Hand Sewn Quilt from Julie Cook
  • Overstuffed! Kids basket from Kathy Cummins
  • Pampered Chef gifts from Julie Gardner
  • Magic Kit from Melvin the Magnificent
  • Overnight Stay from Saratoga Comfort Inn
  • Gift Card from Spare Time Bowling
  • Gift Certificate from Golden Corral
  • Entertainment Book from Tammy deLancey
  • Genie Lamp from Hamada's Egyptian Bazaar
  • img_0360Wine Basket from Amy & Steve Keator
  • Circus Tickets from First Niagara Bank
  • Gift Card from Pizza Hut
  • River Rats "Rowdy" t-shirt (signed by the Ice Mice) from Toby Dawes
  • Mary Kay gift basket from Judy Heffern

TEAM Charlotte supporters that get a special mention:

  • Meryl & Noel Dawes (Granny & Poppa)
  • Darlene & Ron Mann (Gramma & Grampa)
  • dscf1379Lois & Rick Melito
  • Carol & Joe Melito
  • Tammy & David deLancey
  • Audrey & John Elliot
  • Melanie Mann
  • Judy DeRoche
  • Sarah Greener & Charles Dawes and Cousin Evelyn
  • Evie Cornell
  • Toni Collura
  • and many others from Mannix Marketing, Travelers, Corinth Wesleyan Church, Gateway Church, St. Mary's Episcopal Church, and more... :)